Well I dont think I have mentioned this on this forum before but my mother has been very sick most her life with this incurable desiease called Huningtons Desiease*, sorry if the spelling is not right! Basically the desiease reverses you aging process. For the first part of you life you grow and grow like a normal person would but then you stop, you slowly loose your ability to speak, you movements are not longer in your control, you cant walk, and basically in the end you are confined to a bed, someone has to feed you and change your diapers and it is just like being a baby all over again.
My mom always pretty much knew she had the desiease since her Dad had it too and it has been in thier family for generations. She had a brother and sister and they both have it too. Her brother died just a week before she did and then she passed March 30, 2008 in her bed surrounded by our pictures and cards we have sent her over the years.
In a way I am sad because when I turned 18 I was going to take a year off before going to college and move down to be closer to her and take care of her and be there with her everyday just because she is my mom and I love her and I know all she wanted in life was for her kids to be happy and healthy. But now that dream is gone but on the happier side I know she is free now. She is able to walk, run, jump, talk, do everything she wasnt able to do here on earth. I know she is much happier now wherever she is I know that now she will always be here with me helping me through life and over the many obsticals it will throw at me.
Anyway, we are having a service for her this month. Now, I know if anything like this happened to MY sister I dont know what I would do, so I think it is only nice, since it is the only sibling still living, that her sister find a place to scatter her ashes. Each of her kids, me, my sister, and my brother, will keep a little vile full of some and then I want to let her sister dump the rest wherever she knew my mom liked best!
Here are some pictures of all of us! Thier older but it works!
This one is of my Dad, my in front, my sister in back, and my brother on the right:
i know what you are going thru , my father died last June and I still have days when it doesn't seem real. i keep expecting him to knock on my door wanting to know if i want to go for a motorcycle ride. his kidneys had faile and he had disbetes and had lost his eye sight and was confined to a wheel chair the last two years of his life and it was awful to see. I saw many of his friends, who were police officers, cry over the change in him in such a short peroid of time. it must have been very painful to see your mother so sick for a long time. i send you hugs.
I am so sorry to here of your lost I lost my mom 9 years ago to cancer I had to take care of her the last 2 months and it was a horrible thing to watch and nothing you could do she was not only my mom but my best friend I will be praying for you.
So sorry to hear of your moms passing. Huntingtons chorea is a devastating neurological disease, with no known cure. Its hard for the family members to watch a loved one suffer from this disease.
I just lost my hubby at the age of 47 to a heart attack. I find comfort that he went quick and did not have to suffer from something like what your mom had. My heart, thoughts, and prayers, go out to you and your family.
If you are a dog and your owner suggests that you wear a sweater, suggest that he wear a tail.
NoDogYet, yes there is a test you can take to see if you have it. I have asked to get the test so I will be hearing from the docter shortly to set up an appointment. I might have to wait till I am 18 though but I would rather know now then later. In a way if I find out I do I have it would make me stronger and knowing I need to do all I can now in this time because I wont have much time to do what I want to do later in life. And if I find out I dont have it will allow me to live my life to its fullest and nothing will hold me back! If the test does come back positive I will defiently not be having kids because I dont want them to go through what I had to!
Thank you all and I know my family and I are all in your prayers and thoughts!
What a beautiful young school girl your mom was &, yes, even when her illness overtook her she continued to radiate a special beauty that only a mom can when surrounded by the love of her precious children (as clearly shown in the photo of the 4 of you together). What a beautiful family. God rest her soul & bring her loved ones peace.
Dogs have taught me all I need to know about life, love, loyalty, & laughter; & (heartbreakingly), loss & "letting go" of a loved one as well. God bless ‘em…